GI appt

So for the past week and a half, Jacob has pretty much stopped eating.  He has no appetite and when he tries to get food, he has horrible stomach pain.  So instead of eating he just stopped and has lost A LOT of weight.  He is down 16 lbs in about 2 months.  He also has been having lots of issues with his POTS.  And being dehydrated.  So I called in to GI and told them that he has pretty much stopped getting food and they wanted to see us ASAP.  The doctor that we were assigned to, never sees us.  Its always the nurse practitioner and they never know what to do with Jacob.  Every time we get an appt with them they always say that they dont know what to do and has to consult with the doctor.  But yet every time we try to see the doctor, they say she has no openings for months and months.  So when the nurse said we needed to be seen, I demanded that we see the actual doctor.  But this time I said I would see ANYONE!  Well luck has it that our GI is retiring this week and so it was easy to switch doctors.  We got in to see the new one and she was great!  I felt so good talking to her about Jacobs problems.  She agrees with me and neuro that his stomach issues are all part of the autonomic dysfunction that he has.  And that it probably will never get better.  We talked about what to do to get him to eat and so she prescribed us a med that should help him get an appetite.  She said it could take up to 4 weeks for it to work so hopefully it will work soon because today, he had NOTHING to eat until he went to bed.  I figure I can get some in him while hes sleeping.  But last night he woke up with major stomach pain and turned off his machine and unhooked himself haha.  Sometimes I dont like the fact that he can hook and unhook himself.  But other times it comes in handy, thats for sure.  She also gave us some meds that will help his stomach when it hurts.  Its like Tylenol but for stomach pain.  I was very happy with this appt.  Its not very often that I go into an appt with major issues and come out feeling good!  I feel like we have some what of a plan and that hopefully this will help him eat more.  Meanwhile our amazing speech therapist is going to try to help us do some things that will make sure that he does not lose the sensation to eat.  We need to stimulate his taste buds every once in a while.  While it will never be in the cards for him to eat again, we will never give up that hope!  So we want to try everything possible to get him to eat real food again and not have all of his nutrition through his gtube.